Thanks to my brother Mark for nominating me for the #ALS #IceBucketChallenge. I’m not making a video, but will be sure to join the masses who have donated. The nature of charity is that you don’t advertise how much you give (but my donation will be in the 10’s of dollars, I can assure you).
Of course, NOT doing an ice bucket video makes me a bit of party pooper in 2014, and that’s okay. If you want to see ice bucket videos, I’m pretty sure you will find some out there. Dave Grohl dressed up as Carrie. Sammy Hagar telling Eddie and Alex Van Halen to go jump in a lake. Eminem on stage during a concert. I’m pretty sure our friend who called out my wife had someone dump pool water over her head while they were standing in the pool. I thought that was just called “Summer.”
The spirit of this ALS viral fundraising phenomenon, the big picture as I see it, is to bring a “less popular” disease to the forefront. Of course (and unfortunately) we have more than enough diseases and famine in the world that we don’t lack options for our charity dollar.
The ice bucket challenge has brought Amyotrophic Lateral Sclerosis (ALS)—also referred to as “Lou Gehrig’s disease” and Motor Neurone Disease (MND)—out of the shadows 75 years after Gehrig’s last at-bat for the Yankees. This craze has inspired people all over the world to pour in record numbers of donations (see what I did there?).
The death of Robin Williams was my bucket of ice.
Robin Williams died of perhaps the darkest and most unknowable disease there is: Depression. We don’t know what else was going within him to cause his suicide, and reports that he was also beginning a battle with Parkinson’s only leave us with more questions.
I don’t know what it’s like to experience true Depression. Yes, I’ve been sad, but I’ve always had perspective, and a positive outlook on life and I’m always looking to make a joke. Part of the reason for this happiness is that I grew up watching Robin Williams. From the slapstick insanity of Mork and the furious stand-up routines (that also stood at the forefront of the pop-culture/charity movements of the 1980s with Comic Relief) to the dramatic roles that reminded us “You’re not perfect, sport,” and “Seize the day,” Robin Williams improved our mental state while he either numbed his own, or simply held on tight as it deteriorated.
I don’t mean to throw cold water on something that’s supposed to be fun (sorry). All of this is just my long-winded way of avoiding a big bucket of ice water getting dumped on my head. But just as this viral trend has flooded ALS charities (oops, I did it again) with much-needed support, we need to continue to shine our lights, and cameras, and actions, into the shadows of mental illness and addiction.
As always with this stuff, like with Philip Seymour Hoffman’s death… when it’s Cancer or other diseases, there’s usually this tremendous support and compassion… but with Depression, especially when mixed with a history of any type of substance abuse, there’s a stigma, there’s this idea that, “Well, fuck him, he shouldn’t have been such a waste-oid. He did this to himself.” Most substance abuse may start off as choosing to party, choosing to get fucked up, but it too is a disease, no matter if the chicken or the egg is first. Some people turn to substance abuse as a result of Depression. Obviously Depression is a separate animal from Addiction… but they are often treated, or mistreated, similarly.
So I’ll be matching my ALS donation and finding some mental health charities to support as well. And heck, I’m also a big fan of “Music in Schools” charities too! But that’s for another post.
For now, I can only imagine what Robin Williams could have done with a bucket of ice, a camera, and a challenge.
gr8 article! i totally agree.